Evelyn is two months old, has HLHS and has been in the PICU in the LUMC since birth. It’s still a weird idea that she has never been outside and she has never met anyone except us and the staff here. In our previous post we described what happened in March – which felt likeContinue reading “Next mission: GROW”
Category Archives: Evelyn
Our journey: two months of HLHS
Welcome to our first post on our website. We posted updates during Intan’s pregnancy and one month after Evelyn’s birth on Loey’s website. Our lives have changed quite a bit since knowing about our daughter having Hypoplastic Left Heart Syndrome. We are now almost two months in and Evelyn is still on the Intensive Care.Continue reading “Our journey: two months of HLHS”
