Stories

Back in the hospital

We are back in the hospital. If you have been following us on Instagram, you probably have noticed that Evelyn was admitted last Monday. The last month, Evelyn has been doing so well. She has been developing and very important to us, she has been so happy around the house. Smiling, talking, taking solids andContinue reading “Back in the hospital”

HOME

Dear friends, You might have seen it online. We are home! We have been for almost two weeks now. This is what we have been looking forward to for months and months. And roughly three weeks ago the medical team told us she might be able to go home in a week. After a weekContinue reading “HOME”

Post-Glenn update

It has now been one week since Evelyn had the Glenn, the second of the three main surgeries for HLHS children. Intan was able to bring her to the OR and stay with her until she was fully sedated. On the way to the OR, Evelyn was looking around because she has not left theContinue reading “Post-Glenn update”

Next mission: GROW

Evelyn is two months old, has HLHS and has been in the PICU in the LUMC since birth. It’s still a weird idea that she has never been outside and she has never met anyone except us and the staff here. In our previous post we described what happened in March – which felt likeContinue reading “Next mission: GROW”


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