It’s been a long time since we wrote anything. To be honest, for a while we have been wanting to write something. But the longer we waited, the more difficult it becomes to decide what we wanted to write, causing some sort of a spiral. But now we finally got something in writing. Since ourContinue reading “Going back and going forward”
Tag Archives: hypoplastic
You wouldn’t come up with this
Hi all! It has not been that long since we last wrote an update but we really wanted to share some good news. I think it is part of this journey that because there are so many difficult and stressful moments, we experience the milestones and highlights more intense as well. No milestone is takenContinue reading “You wouldn’t come up with this”
A Wild Couple of Weeks
Hi all! It has been a couple of weeks since we wrote an update and a lot has happened. Honestly, 2021 seems like the year that keeps on giving and not in the best way. More on that in this post. In the midst of it all we feel covered by grace and there isContinue reading “A Wild Couple of Weeks”
HOME
Dear friends, You might have seen it online. We are home! We have been for almost two weeks now. This is what we have been looking forward to for months and months. And roughly three weeks ago the medical team told us she might be able to go home in a week. After a weekContinue reading “HOME”
Progress in baby steps
Our heart warrior Evelyn is turning four months! That means we have been in the hospital for four months, of which three weeks in medium care. Evelyn has already had the Norwood and the Glenn procedures – the last one a lot earlier than other HLHS babies. The Glenn has made so much difference. SheContinue reading “Progress in baby steps”
Step down, round-trip ICU and progress
In our last update, we wrote about our upcoming move to medium care; and since we have moved to step down! It’s been a crazy week. A lot has happened and we have definitely moved into new territory, especially compared to our experience with interstage, the time between the first and second surgery. For thoseContinue reading “Step down, round-trip ICU and progress”
Post-Glenn update
It has now been one week since Evelyn had the Glenn, the second of the three main surgeries for HLHS children. Intan was able to bring her to the OR and stay with her until she was fully sedated. On the way to the OR, Evelyn was looking around because she has not left theContinue reading “Post-Glenn update”
The Wittinks 