Hi all! It has not been that long since we last wrote an update but we really wanted to share some good news. I think it is part of this journey that because there are so many difficult and stressful moments, we experience the milestones and highlights more intense as well. No milestone is takenContinue reading “You wouldn’t come up with this”
Tag Archives: surgery
A Wild Couple of Weeks
Hi all! It has been a couple of weeks since we wrote an update and a lot has happened. Honestly, 2021 seems like the year that keeps on giving and not in the best way. More on that in this post. In the midst of it all we feel covered by grace and there isContinue reading “A Wild Couple of Weeks”
HOME
Dear friends, You might have seen it online. We are home! We have been for almost two weeks now. This is what we have been looking forward to for months and months. And roughly three weeks ago the medical team told us she might be able to go home in a week. After a weekContinue reading “HOME”
Step down, round-trip ICU and progress
In our last update, we wrote about our upcoming move to medium care; and since we have moved to step down! It’s been a crazy week. A lot has happened and we have definitely moved into new territory, especially compared to our experience with interstage, the time between the first and second surgery. For thoseContinue reading “Step down, round-trip ICU and progress”